The event included a champagne reception, three course meal, raffle and auction, plus the ceilidh itself. All proceeds will go towards the charity’s objectives: raising awareness of vasculitis, educating medical professionals on how to diagnose it and researching this rare condition.
Some of the money raised by the ceilidh will go towards vasculitis research at the University of Aberdeen, under the leadership of Dr Neil Basu.
To date, the charity has given £62,000 to the university, which has been used to support a three-year PhD research project on vasculitis, alongside a patient support group in the city.
Grant Currie, co-founder of the charity, said, “One shocking thing about vasculitis is that so little is known about it.
“We have a public awareness programme that aims to educate both the general public and medical professionals, but our support of vasculitis research is completely vital.
“Aberdeen is the home of LCTF research and due to the leading researchers and experts in the city it is where the majority of our research funding is spent. We also sponsored the Scottish Society for Rheumatology Conference in October, which was held in the city.
“For that reason, Aberdeen is really important to the Lauren Currie Twilight Foundation, and it was fantastic to meet so many supporters from the area. We are so grateful to all who attended – without our supporters, everything that we’ve achieved in the last five years would have been impossible.”
The Lauren Currie Twilight Foundation was set up by Grant and Adrienne Currie following the tragic death of their 15-year old daughter and only child Lauren in 2010. Lauren had suffered from Granulomatosis with Polyangiitis (formerly known as Wegener’s Granulomatosis), a variant of the auto-immune disease vasculitis.
Lauren’s condition was only diagnosed in the final hours of her life and her parents realised that, with earlier diagnosis, her life could have been saved.
Because vasculitis is uncommon and early diagnosis is an important factor in the effectiveness of medical care, public awareness of the condition is one of the charity’s main objectives.
As well as educating the general public, the charity educates medical professionals on how to spot and diagnose the disease.
Vasculitis refers to an inflammation of the blood vessels. It is an uncommon illness and different variations can affect people of different ages.
The Lauren Currie Twilight Foundation aims to raise the international profile of vasculitis, and is one of only two vasculitis-specific charities operating in the UK. It is keen to collaborate with other relevant charities, including those in the US.
The Lauren Currie Twilight Foundation has produced a video explaining the condition, which can be foundhere.